Skip to main content

Shell-Shocked Parents of Kids w/ #Autism Need Help From Private Sector

Parents with children with severe special needs commonly mirror the emotional turmoil of soldiers with PTSD, or Post Traumatic Stress Disorder, a term used to replace battle-hardened, 'shell-shocked' men coming from war.

Just yesterday I was in a particular office with four mothers, and it being Puerto Rico, the conversation was loud and inclusive. By no means would I attempt to enter a conversation as a stranger on the U.S. mainland, but the culture is different here. People are warm, gregarious and a bit nosy... kind of like one big family...kind of..

So these Moms are talking about their children with autism, and one has tears welling-up in her eyes, the other is 'unloading' her thoughts and feelings after so many years of battling and advocating for her child, and another Mom (not all at the same time) is telling me and everyone in earshot how frustrating it is that just about every year her child has to get re-acquainted with a new set of Special Educators, a new set of assistants, and a new timeline for everyone to be back up to speed. The worst thing of all is that her child has to re-establish rapport with new people. This makes for disjointed progress, if at all.

If you want to talk about throwing monkey wrenches... here is one. Children with all kinds of autism commonly have mental flexibility executive function skill deficit. That implies that transitioning from a thought, feeling, or activity is cumbersome for them. When the people helping you excel leave and you get new ones (or have to wait a long, long time for new replacements) the whole daily routine gets out of whack. Parents, especially Mom's, have to mop up the mess in routine, shore up the short-comings of Special Education services as best they can and simultaneously advocate (that implies fight) for appropriate services. 

As if a Mother's job was not already overburdened, helping attain services, not even the right kind of services, just services, is like fighting at the Alamo after the munitions have dried up. I can almost here Davy Croquette telling his men to fix their bayonets.

Truth be told, no one is advocating for physical violence here, but I AM illustrating that for these parents relying on .gov services, it is one wave after another of obstacles, setbacks, difficulties, and dissapointment. This is especially true when a local government is having a perpetual fiscal crisis. 

Not all parents with children on the autism spectrum are 'shell-shocked' of course. Parents with greater  financial means can attain a variety of laser-focused services that manifest great progress in short time, but even for them it is hard. All parents want the best for their kids and it can be very  taxing to advocate and constantly allocate physical, mental, emotional, and monetary resources on a daily basis. It is exhausting.

Can we leave it all up to Mom's and Dad's to mop up the mess left by the causes of autism? No. They need all kinds of help, like health insurance companies not hassling them every time for reimbursement. A great way to help parents with any child with special needs, not just autism, is for private related-service professionals to more voiceferously market themselves in communities. Creating a competition for services creates a menu of options for families, helps drive affordable rates, and brings in laser-focused services to each home. 

In this paradigm, the parents become the bosses, and the system completely becomes performance-based! This does not end a disability like autism, but it level's the playing field for parents, putting them in the drivers seat and calling the shots.

No need to fix your bayonets, parents can outflank many common pitfalls by going straight to private industry, just like Coach Bill. 

I work with parents in Connecticut, New York, Martha's Vineyard and Puerto Rico, and though I have a standard rate, my Puerto Rico rates are significantly lower. Stateside I am covered by a few, not all, but a few major health insurance companies, and am focused on becoming part of various Puerto Rico health insurance coverage networks. 

Currently, aside from fomenting my private practice locally,  I meet daily with multiple schools, organizations, and governmental offices pitching two proposals to reach out to the poorest of the poor living at or near the poverty rate and on welfare. One of my proposals cranks out effective students and effective entrepreneurs in the context of executive function skill and hemispheric development, while the other is focused on developing the executive function skills and hemispheric balancing with children and young adults with autism using a framework of planning, prioritizing and following through on their goals, desires, and parent wants. Both proposals espouse  and practice real professional job skills needed to excel, regardless of one's neurological health.

CoachBill.US travels on a monthly basis to the states, and leads Life Skills Corp. which is also a credentialed provider for the Department of Child and Family Services across Connecticut.

Want to start an Escuela of Executive Function Skills & Entrepreneurship? You got space, chairs, and tables? Let's talk on how to help the community and even your back pocket.

Email me via CoachBill.US


Popular posts from this blog

Clinical Teachers: Armies of One / #edchat #criticalthinking #education

It is not the responsibility of empty vessels to create the motivation to learn, but rather, the prerogative to teach, the very responsibility of it, must be entrusted to the teacher. It can be so, that according to a child’s social-economic status, a affluent upbringing can be infused with a ‘comfort space’ of human development not generally experienced in the life of the child who hails from a low-income community. 
This juxtaposition in the human development and daily experiences of the affluent child and the child who lives at or near the poverty line bring a different array of positive and negative forces which impact their general well-being. As these two general sets of children age, the difference becomes more contrasted and is clearly evident at the time both reach middle school years. One need only look at children who receive private schooling as opposed to those who receive public school education in low-income neighborhoods. A child who attends private schooling and then e…

The Golden Rule & The Duty of Critical Thinkers / #socialresponsibility #edchat #TeamUSA

updated 2:24 pm est 11/10/17 The idea of cultivating critical thinkers is easily a lofty ideal purported to be achieved throughout academia and espoused as the hallmark of journalistic integrity.  Achieving the critical thinking mind requires a certain bravery, wherein, once our ability to tap into our own knowledge of content matter is done, we must require it upon ourself to contrast our assessment and infer from an ‘outsiders’ point of view what is true and right and what is inaccurate and, even possibly, the propagandization of a special interest.
For the critical thinker, the affinity to discern is attached to our decision to look at the hard truth and favor this over our viewpoints, our political inclinations, and our stance on any given subject. This is hard to do.
In the following essay, I ask what exercise in democracy is achieved if political forces practice varying levels of indoctrination, in effect swaying public interest towards their ‘camp,’ rather than promoting …